Connect with our local chapter:

The Huntington’s Disease Society of America, San Diego Chapter
Is seeking a Social Worker

$25-$35 an hour

  • 40 hours per month position, on an independent contractor basis.
  • This position is remote until COVID-19 is controlled.
Qualifications:
An MSW or BSW/BS/BA (with 10 years relevant experience) from an accredited institution is required. Experience with neurologic disease, hospice, long-term care facilities is critical.

Requirements:
  • An HDSA social worker is an independent contractor and requires an active social work license and liability insurance.
  • The social worker will sign an annual contract and provide proof of current license and liability insurance at time of hire and annual renewals.
  • The social will manage own records for continuing education to maintain an active social work license.

Job Description:
This part time social worker will assist local HD persons, families and community professionals with information, resources and assistance on Huntington’s disease. The social worker hired by an HDSA chapter or affiliate works for HDSA, the national non-profit organization dedicated to improving the lives of those affected by Huntington’s disease. HDSA social workers provide referrals to community services, help to create community awareness about HD, promote advocacy and encourage research participation.

The position is to assist families and other professionals to find appropriate referrals and refer families onward to services. This is not a case management position. The social worker should be familiar with crisis services available in the community for callers needing crisis mental health or medical services.

Responsibilities:
The position will include responding in a timely manner to helpline calls, emails, leading a local support group and monitoring regional support groups, assisting the chapter in local educational events and quarterly fund raising events. The social worker will create and maintain a resource guide to answer questions on relevant issues important to the community. The social worker will interact with local professionals (home health agencies, long-term care facilities, local MDs and clinics, law enforcement) to educate and inform so that new avenues for services are made available to local families. These resources are shared with the national office quarterly in order to ensure wide distribution of resources.

An HDSA Chapter Social Worker will work on the following core competencies to improve their knowledge of HD to assist in their practice in their first 6 months of hire. The Assistant Director of Community Services will help new social workers have access to this information.
  • What is HD? Be able to discuss neurodegenerative disorders, CAG repeat, triad of symptoms and JHD
  • Understanding the need for multidisciplinary evaluations and the role of the following professionals that might include neurologist, movement disorder neurologist, psychiatrist, psychologist, and neuropsychologist. The list can also include speech- language pathologist, occupational therapist, physical therapist, and nutritionist.
  • Medications for psychiatric and movement symptoms.
  • Genetic testing guidelines- GINA, basic genetics
  • Advanced medical directives- conservatorship/guardianship, special needs trust, hospice/palliative care, durable power of attorney, medical power of attorney
  • State and federal insurances- long term care insurance, state Medicaid guidelines and waivers, Medicare, SSDI/SSI
  • Research- Phase1-4 trials, observational vs medicine trials, how to access trial information, where to get current research information
  • Family dynamics- unique family dynamics occur with an inherited disease
  • Long term care- facilities with HD units or facilities that have accepted HD persons in the past.
Social workers will be provided with a phone number with voicemail and texting capabilities through Zoom to act as their work phone. Social workers will be expected to utilize this service on their own devices through their mobile phone carrier provider.

License and continuing education:
Social workers are expected to maintain state licensing requirements and may participate in relevant HDSA webinars no more than 10% of hours worked monthly. It is critical to keep abreast of relevant HD updates through HDSA and other entities. Social workers will be paid for this time by the chapter.

Social workers are required, and are supported by the chapter budget, to attend the annual Professional Day of training the Thursday before the HDSA national convention each June. This includes plane/train transportation, mileage to and from airport, parking, hotel transport, hotel room for at least 2 nights and meals. The social worker will be paid their hourly wage for 8 hours for professional training. Chapter Social workers (especially those new to HD) may also want to negotiate with the chapter for hotel funding to attend workshops at the national convention to bolster their HD education and help them increase their core HD knowledge. This arrangement should be worked out with chapter administration prior to convention.

A social worker will need to comply with the licensure of their state to complete needed CEUs. Some CEUs will be offered during HDSA Professional Training.

Reporting:
All social workers will complete a quarterly report that is sent to the Assistant Director of Community Services April 15, July 15, October 15 and January 15. The monthly invoice for reimbursement is sent to the national HDSA office and will link with this report. All social workers will be expected to utilize software provided by HDSA to track services provided, time spent and resources identified. The software is HIPAA compliant and identifying information about individuals and families served will not and cannot be reported by the national office.

Travel to and from support groups and educational events will be paid with chapter funds proportional to the number of hours per month worked. This should not exceed 25% of the monthly hours.

Other invoice items can include HDSA webinars, educational events, chapter sponsored events where the social worker has direct interaction with families (for example a display table at a walk and not just attending the event)

The local social worker will work with a HDSA Center of Excellence social worker (if available) to share resources and create a working bond in the region. This partnership should include other local HD clinics or neurology practices that see HD families.

Supervision:
The chapter social worker has 2 levels of supervision. The local chapter will provide an administrative supervisor, typically the Family Service liaison for the board. The clinical supervisor is the Assistant Director of Community Services at the HDSA national office.

Monitoring local support groups:
The chapter social worker will utilize the training materials developed by HDSA to understand the specific issues that can present in groups with HD persons.

The chapter social worker will familiarize her/himself with all the local support groups whether led by peers or professionals. The social worker should interact quarterly with the leaders to talk about how the group is functioning, if speakers or other services are needed and to update the national office on any change of leadership, meeting location, etc.

Privacy and confidentiality:
Social workers should be familiar with the NASW ethical guidelines around privacy and confidentiality. In the HD population it is particularly important to abide by these guidelines as working with families with mixed feelings about sharing information and work within an HDSA chapter can present challenges. The information gathered from a call or email is not to be shared with chapter members without permission.

The HDSA social worker will meet HIPAA standards for confidential record keeping compliant with the license of their state. Records kept are the property of HDSA. If a social worker leaves her position, records will sent to the national office Assistant Director of Community Services.

Time away:
If the social worker will be unavailable for a week or longer, they must inform their administrative and clinical supervisor. They will put a message on the helpline and email about the dates that they are unavailable and direct callers to the HDSA helpline. If the time away is for an extended period, the supervisors will work to find local or regional assistance to handle help line calls.

Educating Long Term Care/Law enforcement entity/home health agency:

The social worker will look for opportunities to provide in-services to entities that have persons with HD, are providing service to a person or have previously had persons in their care to provide information about proper care.

One in-service per quarter is required. The social worker will maintain a database of these agencies and share this list for the national website.

All recordsphones, records, materials and resource binders are property of HDSA national and will be returned toretained by the national office when a chapter social worker leaves for any reason.

An MSW or BSW/BS/BA (with 10 years relevant experience) from an accredited institution is required. Experience with neurologic disease, hospice, long-term care facilities is critical.

An HDSA social worker is an independent contractor and requires an active social work license and liability insurance. The social worker will sign an annual contract and provide proof of current license and liability insurance at time of hire and annual renewals. The social will manage own records for continuing education to maintain an active social work license.


Pay:
$25.00 - $35.00 per hour


Schedule:
Flexible schedule

COVID-19 considerations:
The interview process and this position will be remote until COVID-19 is controlled. At that point attendance to occasional events may be requested, dependent on employee availability.

Company's website:
http://san-diego.hdsa.org/

Company's Facebook page:
https://www.facebook.com/HDSASanDiegoChapter

Work Remotely:
Temporarily due to COVID-19

COVID-19 Precaution(s):
Remote interview process

To apply:
Submit the following to jamiejirik@gmail.com
  • Cover Letter
  • CV/Resume