Our Chapter’s Mission

We are the Huntington's Disease Society of America, San Diego Chapter. We are a chapter of the Huntington's Disease Society of America, the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with Huntington’s disease and their families.

  The purpose of our chapter is:
  • To help individuals affected by Huntington's Disease and their families through support and services
  • To educate both the public and health care professionals about Huntington's disease
  • To promote and support research directed at discovering a treatment and ultimately a cure for Huntington's disease.

While there is still no cure for HD, today there is more hope than ever that we can beat this disease. Until then, our chapter will strive to provide support and sustenance to our HD families, knowing that while research provides hope for the future, we must provide care for our HD community today. We have become an active community, educating ourselves, sharing information, and advocating for ourselves and our loved ones.

Contact us today to volunteer, join a committee, participate in or coordinate a new event, become a sponsor, locate a support group or attend an educational event near you!

Board of Directors

Beth Hoffman, President
Hayley Johnston, Vice President
Glen Murdoch, Treasurer
Nan Pace, Secretary
Kim Ayres
Carleen Berry
Misty Daniel
Meredith Fidler
Maria Gibson
Jessica Goff
Mike Goff
Jenny Hill
Jamie Jirik
Paul June
Eric Ludwig
Courtney Rains
Guy Riddle
Rick Urban
Dinisa Valadao

Advisory Board

Rolf Benirschke Jill Faucher Randy Nakagawa
Bruce Binkowski Ron Fowler Mike Neil
Nick Canepa Gustavo Friederichsen Drew Schlosberg
Steve Carrizosa Tom Gable Sharon Shaffer
John Clark Ann & Ben Haddad Susie & Dean Spanos
Pat Connors Peggy Johnson John Still
  Cheryl Kendrick  

Get Involved

If you are interested in volunteering for any of our events or serving on an event committee
please email Beth Hoffman at bjhoffman@earthlink.net.


HDSA San Diego Chapter President

Beth Hoffman

HDSA Director of Field Development & Operations

Nancy Rhodes
(760) 566-9622
P.O. Box 2078
San Marcos, CA 92079

UC San Diego Center of Excellence Huntington’s Disease Clinical Research Center Coordinator

Sungmee Park
(858) 246-1254

HD Support Group

Nan Pace

Misty Daniel
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