Our Chapter’s Mission

We are the Huntington's Disease Society of America, San Diego Chapter. We are a chapter of the Huntington's Disease Society of America, the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with Huntington’s disease and their families.

  The purpose of our chapter is:
  • To help individuals affected by Huntington's Disease and their families through support and services
  • To educate both the public and health care professionals about Huntington's disease
  • To promote and support research directed at discovering a treatment and ultimately a cure for Huntington's disease.

While there is still no cure for HD, today there is more hope than ever that we can beat this disease. Until then, our chapter will strive to provide support and sustenance to our HD families, knowing that while research provides hope for the future, we must provide care for our HD community today. We have become an active community, educating ourselves, sharing information, and advocating for ourselves and our loved ones.

Contact us today to volunteer, join a committee, participate in or coordinate a new event, become a sponsor, locate a support group or attend an educational event near you!

Board of Directors

Beth Hoffman, President
Hayley Johnston, Vice President
Carleen Berry, Treasurer
Guy Riddle, Secretary
Kim Ayres
Misty Daniel
Maria Gibson
Meredith Fidler
Jessica Goff
Mike Goff
Nan Pace
Courtney Rains
Rick Urban
Dinisa Valadao

Advisory Board

Rolf Benirschke
Bruce Binkowski
Dr. Jody Corey-Bloom
Nick Canepa
Steve Carrizosa
John Clark
Pat Connors
George Essig
Jill Faucher
Ron Fowler
Gustavo Friederichsen
Tom Gable
Ann & Ben Haddad
Peggy Johnson
Bill Johnston
Cheryl Kendrick
Rob Millum
Randy Nakagawa
Mike Neil
Drew Schlosberg
Sharon Shaffer
Susie & Dean Spanos
John Still

Get Involved

If you are interested in volunteering for any of our events or serving on an event committee
please email Beth Hoffman at bjhoffman565@earthlink.net.
 

Contacts

HDSA San Diego Chapter President

Beth Hoffman
805.558.2664
bhoffman565@earthlink.net
 

HDSA Regional Development Director
Pacific Southwest and Northwest Regions

Anita Dominguez
(760) 566-9622
Huntington’s Disease Society of America
P.O. Box 10368
Burbank, CA 91510-0368

UC San Diego Center of Excellence Huntington’s Disease Clinical Research Center Coordinator

Sungmee Park
Sup035@ucsd.edu
(858) 246-1254

HD Support Group

Nan Pace
hdsa_nan.pace@yahoo.com

Misty Daniel
hdsarnr@gmail.com
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