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Our Chapter’s Mission

We are the Huntington's Disease Society of America, San Diego Chapter. We are a chapter of the Huntington's Disease Society of America, the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with Huntington’s disease and their families.

  The purpose of our chapter is:
  • To help individuals affected by Huntington's Disease and their families through support and services
  • To educate both the public and health care professionals about Huntington's disease
  • To promote and support research directed at discovering a treatment and ultimately a cure for Huntington's disease.

While there is still no cure for HD, today there is more hope than ever that we can beat this disease. Until then, our chapter will strive to provide support and sustenance to our HD families, knowing that while research provides hope for the future, we must provide care for our HD community today. We have become an active community, educating ourselves, sharing information, and advocating for ourselves and our loved ones.

Contact us today to volunteer, join a committee, participate in or coordinate a new event, become a sponsor, locate a support group or attend an educational event near you!


Board of Directors

Jamie Jirik, President
Mindy Schroeder, Vice President
Beth Hoffman, Treasurer
Doug Schulte, Family Advocacy
Meredith Fidler
 


Friends of the Board

Misty Daniel
Nan Pace
Dr. Jody Corey-Bloom
George Essig
Bill Johnston
Jenny Hill
Sharon Shaffer
Hayley Johnston


Get Involved

If you are interested in volunteering for any of our events or serving on an event committee
please email Jamie Jirik at jamiejirik@gmail.com.
 

Contacts

HDSA San Diego Chapter President

Jamie Jirik
jamiejirik@gmail.com


HDSA Regional Development Director, Pacific Southwest and Northwest Regions

Anita Dominguez
(760) 566-9622
adominguez@hdsa.org
 

UC San Diego Center of Excellence Huntington’s Disease Clinical Research Center Coordinator

Chase Snell
cmsnell@ucsd.edu


HD Support Group

Doug Schulte
(858) 245-8571
dschilte@san.rr.com

Nan Pace
hdsa_nan.pace@yahoo.com