HDSA Community & Social Support

  • HDSA Support Groups
  • HDSA Social Workers
  • HDSA Resource Library
  • Youth Services
  • CareGiver Services & Resources
  • HDSA Telehealth- a free internet-based program powered by Amwell, that brings qualified HD knowledgeable licensed social workers and psychologists to the HD community.​


HDSA Convention Presentations

Each year, HDSA holds a National Convention that includes sessions that inform the HD Community about research, support, and more. For more information, click here

HDSA National Youth Alliance (NYA)

Motivates youth to get involved in their local HDSA Chapters, Affiliates, and Support Groups in efforts through education, fundraising, advocacy and awareness for Huntington’s disease. The NYA is a collection of children, teens and young adults from across the country. To learn more about the NYA, click here

HDSA's Here's The Deal

The conversation series tackles important topics to help you navigate through your HD journey. Episodes air on HDSA’s YouTube channel and will include discussions about isolation, testing, relationships, family planning & much more. Hosted by Jennifer Simpson, the series allows members of the HD community to submit questions & some will be featured in the upcoming segment. To watch more episodes, click here   

Our Odyssey

Connecting young adults impacted by a rare or chronic condition with social and emotional support in the hope of improving their quality of life. Online support for your adults with rare disease, founded by someone who is gene positive. For more information, click here

HD Buzz

The latest HD research updates explained so everyone can understand. For more information, click here

The Huntington's Disease Youth Organization (HDYO)

Provide support and education to young people (aged up to 35) impacted by Huntington’s disease (HD) around the world. For more information, click here