Click here to register for one or more education day events
Do you have an idea for an Education Day topic?  If so, please email Doug Schulte, dschulte91@outlook.com 

 
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Upcoming 2022 Education Days

We are working to bring you more important topics in the new year.  Check back soon for a copmrehensive schedule!  Expected dates are:
 
  • May 21, 2022, 10am-noon
    Click here to register

    Help Cure HD will present on PGT-IVF

    Pre-implantation Genetic Testing (PGT) screens embryos for HD before they are implanted using in-vitro fertilization (IVF). This process, allows couples to eliminate the chance of their children inheriting and passing on Huntington’s Disease. PGT-IVF is the only way for parents to guarantee their biological child will be HD-free. This process can wipe out the Huntington’s Disease gene forever.  Help Cure HD is a non-profit organization providing grants to couples want to have HD-free children.  Whether you want to learn more about PGT-IGV or want to apply for the grant, this presentation will help introduce you to this procedure and answer your questions.

    Speakers include:

    10:00AM to 10:30AM

    Lauren Korty, M.S., Certified Genetic Counselor
    ​Topic:  HD Counseling and Genetic Testing

    Lauren Korty, MS, is a board-certified genetic counselor who provides risk assessment and genetic counseling for patients and their families. She helps people investigate their family health history, navigate the genetic testing process, and understand and adapt to the medical or psychological implications of genetic diseases. Ms. Korty's expertise includes evaluating hereditary cancer syndromes, as well as prenatal genetic counseling. As part of UC San Diego Health's Family Cancer Genetics Program, Ms. Korty helps ensure that patients and families with an increased risk of cancer receive outstanding care, with a focus on cancer prevention and early detection

    10:30AM to 11:00AM

    Dr. Irene Su
    Topic:  The IVF Process

    H. Irene Su, MD MSCE is Professor of Obstetrics, Gynecology and Reproductive Sciences, in the Division of Reproductive Endocrinology and Infertility.  She is the Reproductive Endocrinology and Infertility Fellowship Program Director and Director of the Oncofertility Program at UC San Diego.
     
    11:00AM to 11:30AM

    Nicki Sims, Help CureHD Director of Clinical and Patient relations
    TOPIC:  The grant selection process.

    Nicki Sims is a Florida native that was raised in a family where philanthropy, advocacy and sharing her passions to benefit others became second nature.  Those same qualities, along with her families involvement and love of sports contributed to the fabric of who she is today.   

    Nicki attended college at the University of Tampa with a major in Heath Science and minor in Marketing  and the University of Notre Dame  for Non-Profit Leadership and Management. With over 15 years experience in Healthcare and Administration and over 5 years Fundraising and Non-Profit, Nicki prides herself on her work within the HD community and feels blessed to work with passion and purpose everyday through The HelpCureHD Foundation.


    11:30 - Noon

    Allie Smith, Sports Reporter and PGT-IVF Patient
    Founder, Help Cure HD

    TOPIC:  The patient PGT-IVF perspective

    Allie Smith, TNT Sports Report and former CBS sports reporter. Allie is married to professional baseball player, and son of an HD positive mother, Joe Smith.  Together they founded Help Cure HD.  She is also pregnant with an HD-free baby, achieved through PGT-IVF!



     

  • August 27, 2022 (Tentative)

  • November 19, 2022 

    UCSD Center of Excellence
    Annual Research Update 
 

 

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February 26, 2022

Susan Reynolds, MSW, LICSW
Topic:  "Advance Care Planning: Health Care Directives"
Dr. Terry Tanaka
Topic:  "Oral Health Care for Individuals with Huntington's Disease

 

November 23, 2021
Dr. Jody Corey-Bloom "Annual Research Update"

May 30,2020
Jimmy Pollard “The Huntington’s Disguise” 
Shannon O'Neil Jones – “Estate Planning”


July 18, 2020 
Jennifer Hill LPCC – “Mental Health and HD”,
Lindsey Zehren – “Music Therapy”


September 26, 2020  
Jody Corey- Bloom, MD, PHD – “Update on HD +Research 2020”,
Allison Bartlett, esq – “Disability Benefits”


November 21, 2020
Kristen Rigsbee - “Navigating the Assisted Living System-What you need to know before you   go”
Lisa Mooney LCSW – “Ask The Social Worker”


February 27, 2021
Dr. Leora Fox - The Latest in Research

May 8, 2021
Matthew Santamaria - Using Social Media. 
Click here for Presention Slides.
Mindy Schroeder, MPH - Fundraising Tutorial. 
Click Here for Presentation Slides.

 

H. Irene Su, MD MSCE is Professor of Obstetrics, Gynecology and Reproductive Sciences, in the Division of Reproductive Endocrinology and Infertility.  She is the Reproductive Endocrinology and Infertility Fellowship Program Director and Director of the Oncofertility Program at UC San Diego