Explore the Voice of the Patient Report to hear directly from people and families living with Huntington’s disease — their stories, struggles, and hopes that will help shape the future of care and advocacy.

📣 Share your voice! Take the HDSA Strategic Plan Survey and help shape the future of our mission.

HDSA Research Fellowships 2025 Berman- Topper Family HD Career Development Fellowship Recipient

FIND HDSA RESOURCES NEAR YOU

HDSA provides world-class support programs and resources across the country for everyone impacted by Huntington’s disease. Visit our interactive map to get started today!

HDSA SOCIAL WORKERS

HDSA Social Workers are often the first voice that someone new to HD may hear. Social workers offer information, education and access to community based services within a specific region.

HDSA SUPPORT GROUPS

HDSA support groups are free for individuals, their loved ones, and families impacted by Huntington’s disease.